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Top Disability related benefits topic #5895

Subject: "Extremely rare and unusual medical condition." First topic | Last topic
mike shermer
                              

Welfare Benefits Officer, Kings Lynn & West Norfolk Borough Council, Kings l
Member since
23rd Jan 2004

Extremely rare and unusual medical condition.
Wed 23-Apr-08 10:30 AM



The diagnosis is "Stiff man syndrome" - plenty about it on the net.

Apparently there are only 90 cases known in this Country, so the chances of finding another WRA out there who has had one of these and got DLA for it are probably remote - but if there is one, I like to hear from you...

  

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Replies to this topic
RE: Extremely rare and unusual medical condition., past caring 1, 23rd Apr 2008, #1
RE: Extremely rare and unusual medical condition., mike shermer, 23rd Apr 2008, #2
      RE: Extremely rare and unusual medical condition., claire hodgson, 23rd Apr 2008, #3
      RE: Extremely rare and unusual medical condition., paul__moorhouse, 23rd Apr 2008, #4
           RE: Extremely rare and unusual medical condition., ros_white, 23rd Apr 2008, #5
                RE: Extremely rare and unusual medical condition., suelees, 24th Apr 2008, #6
                     RE: Extremely rare and unusual medical condition., past caring 1, 24th Apr 2008, #7
                          RE: Extremely rare and unusual medical condition., nevip, 24th Apr 2008, #8
                               RE: Extremely rare and unusual medical condition., suelees, 24th Apr 2008, #9
                                    RE: Extremely rare and unusual medical condition., ros_white, 24th Apr 2008, #10
                                    RE: Extremely rare and unusual medical condition., nevip, 24th Apr 2008, #11
                                         RE: Extremely rare and unusual medical condition., past caring 1, 24th Apr 2008, #12
                                              RE: Extremely rare and unusual medical condition., John Birks, 25th Apr 2008, #13
                                                   RE: Extremely rare and unusual medical condition., jj, 25th Apr 2008, #14
                                                        RE: Extremely rare and unusual medical condition., Joanna, 28th Apr 2008, #15
                                                             RE: Extremely rare and unusual medical condition., ariadne2, 28th Apr 2008, #16
                                                                  RE: Extremely rare and unusual medical condition., shawn, 28th Apr 2008, #17

past caring 1
                              

Welfare Benefits Casework Supervisor, Cambridge House Law Centre, London SE5
Member since
09th Oct 2007

RE: Extremely rare and unusual medical condition.
Wed 23-Apr-08 11:11 AM

Wed 23-Apr-08 11:11 AM by past caring 1

I so want to make a lewd joke about this, especially given the "I like to hear from you" typo.

Sorry.

  

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mike shermer
                              

Welfare Benefits Officer, Kings Lynn & West Norfolk Borough Council, Kings l
Member since
23rd Jan 2004

RE: Extremely rare and unusual medical condition.
Wed 23-Apr-08 11:48 AM



...which only goes to show that there's a certain lack of class on this site - there was a time when the serfs knew their place - I blame the likes of Thomas Paine etc for using big words like equality - putting ideas in their heads.....

Anyway, with your back to the wall, put your best foot forward, shoulder to the wheel, nose to the grindstone and don't look too surprised when you fall flat on one's face.......

PS - when ladies use a Satnav, do they turn it upside down when driving south - like they use to when using a map...?

  

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claire hodgson
                              

Solicitor, Askews Solicitors, Thornaby, Stockton on Tees
Member since
17th May 2005

RE: Extremely rare and unusual medical condition.
Wed 23-Apr-08 12:54 PM

"PS - when ladies use a Satnav, do they turn it upside down when driving south - like they use to when using a map...? "

careful mike ...

  

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paul__moorhouse
                              

welfare rights trainer and writer, freelance Bristol
Member since
14th Feb 2008

RE: Extremely rare and unusual medical condition.
Wed 23-Apr-08 12:56 PM

Thomas was one of the wisest minds to come from Norfolk, and I believe that there are those who argue that leaving Norfolk was one of the wisest things he did.

Are you quite as familiar with the ideas of Mary Wollestonecraft though, Mike?

I vaguely recall being taught to orientate the map in the direction I was going in when doing my map reading badge in the Cub Scouts....

  

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ros_white
                              

welfare benefits adviser, notting hill housing trust, hammersmith
Member since
11th Jan 2008

RE: Extremely rare and unusual medical condition.
Wed 23-Apr-08 02:45 PM

What is wrong with turning map upside down?? Some people!!

  

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suelees
                              

Welfare and Debt Advisor, Stephensons Solicitors, Wigan
Member since
28th Jan 2004

RE: Extremely rare and unusual medical condition.
Thu 24-Apr-08 08:45 AM

Who are these 'ladies' Mike's talking about?

  

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past caring 1
                              

Welfare Benefits Casework Supervisor, Cambridge House Law Centre, London SE5
Member since
09th Oct 2007

RE: Extremely rare and unusual medical condition.
Thu 24-Apr-08 09:18 AM

"I like to hear from you" type ladies?

  

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nevip
                              

welfare rights adviser, sefton metropolitan borough council, liverpool.
Member since
22nd Jan 2004

RE: Extremely rare and unusual medical condition.
Thu 24-Apr-08 01:56 PM

Excuse me, I seem to have wandered into Little Britain!

  

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suelees
                              

Welfare and Debt Advisor, Stephensons Solicitors, Wigan
Member since
28th Jan 2004

RE: Extremely rare and unusual medical condition.
Thu 24-Apr-08 02:34 PM

you lucky boy - surrounded by ladies going about their ladylike business like any other normal ladies...

  

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ros_white
                              

welfare benefits adviser, notting hill housing trust, hammersmith
Member since
11th Jan 2008

RE: Extremely rare and unusual medical condition.
Thu 24-Apr-08 02:53 PM

Anyway, if I was sexist (which obviously I'm not) I'd say that turning maps the wrong way up was an example of the superior lady brain in action.

  

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nevip
                              

welfare rights adviser, sefton metropolitan borough council, liverpool.
Member since
22nd Jan 2004

RE: Extremely rare and unusual medical condition.
Thu 24-Apr-08 02:57 PM

Lol! Just my bloody luck. Surrounded by ladies with moustaches!

  

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past caring 1
                              

Welfare Benefits Casework Supervisor, Cambridge House Law Centre, London SE5
Member since
09th Oct 2007

RE: Extremely rare and unusual medical condition.
Thu 24-Apr-08 05:14 PM

*ahem* - Ros, the only time you were in my presence and map-reading skills were required (half-way up St Sunday Crag a couple of years back), you showed a most ladylike disinclination to peruse the chart whichever way it was pointed!!

  

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John Birks
                              

Welfare Rights Officer, Stockport Advice
Member since
02nd Jun 2004

RE: Extremely rare and unusual medical condition.
Fri 25-Apr-08 07:23 AM

Can the thread be renamed Ooooooooooh Matron!

My name is Sam Tyler, I had a accident and woke up in 1973. Am I mad, in a coma, or back in time? What ever has happened, its like I landed on a differnet planet, and if I can figure out the reason, maybe I can get home!


  

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jj
                              

welfare rights adviser, saltley & nechells law centre birmingham
Member since
21st Jan 2004

RE: Extremely rare and unusual medical condition.
Fri 25-Apr-08 04:31 PM

there's nothing i can say now which wouldn't end with a fnah fnah...lol!

jan
cracked up

  

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Joanna
                              

Student Adviser, Information and Advice Service,, Union of Brunel Students, Brunel University
Member since
28th Jan 2004

RE: Extremely rare and unusual medical condition.
Mon 28-Apr-08 09:05 AM

I am voting this thread to be best ever. And poor Mike still doesn't know anything about his "stiff man" !

  

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ariadne2
                              

Welfare lawyer and social policy collator, Basingstoke CAB
Member since
13th Mar 2007

RE: Extremely rare and unusual medical condition.
Mon 28-Apr-08 03:07 PM

To get back to the query.

Mike, if you Google UK sites for "stiff man syndrome" you will come to the organiastion "Contact a family". It has a very informative page on the condition, and looks as if it offers the opportunity to get in touch with people who have experience of the disorder.

It strongly suggests that, like many other autoimmune diseases, it is of hugely variable manifestation and thus as ever the way it affects your indiviudla client is what matters, rather than what could theoretically happen.

the site suggests that the incidence is rather higher that suggested - maybe 1 in 200,000 - and that it strongly correlates with diabetes, 40% of those affects being diabetic.

  

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shawn
                              

editorial director, rightsnet
Member since
28th Jul 2005

RE: Extremely rare and unusual medical condition.
Mon 28-Apr-08 03:15 PM

http://www.cafamily.org.uk/Direct/s55.html

  

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Top Disability related benefits topic #5895First topic | Last topic